Featured Speakers

One Voice Conference is honored to have the following keynote speakers join us in Rochester! Please check back often as speakers are confirmed.

 
 
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Joseph Shapiro

Correspondent, NPR Investigations

Joseph Shapiro is a NPR News Investigations correspondent.

In this role, Shapiro takes on long-term reporting projects and covers breaking news stories for NPR's news shows.

Shapiro's major investigative stories include his reports on the way rising court fines and fees create an unequal system of justice for the poor and the rise of what critics call "modern day debtors' prisons," the failure of colleges and universities to punish for on-campus sexual assaults, the epidemic of sexual assault of people with intellectual disabilities, the problems with solitary confinement, the inadequacy of civil rights laws designed to get the elderly and people with disabilities out of nursing homes, and the little-known profits involved in the production of medical products from donated human cadavers.

His reporting has generated wide-spread attention to serious issues here and abroad. His "Child Cases" series, reported with PBS Frontline and ProPublica, found two dozen cases in the U.S. and Canada where parents and caregivers were charged with killing children, but the charges were later reversed or dropped. Since that series, a Texas man who was the focus of one story was released from prison. And in California, a woman, who was the subject of another story, had her sentence commuted.

Shapiro joined NPR in November 2001 and spent eight years covering health, aging, disability and children's and family issues on the Science Desk. He reported on the health issues of veterans returning from Iraq and Afghanistan and helped start NPR's 2005 Impact of Warseries with reporting from Walter Reed Army Medical Center and the National Naval Medical Center. He covered stories from Hurricane Katrina to the debate over overhauling the nation's health care system.

Before coming to NPR, Shapiro spent 19 years at U.S. News & World Report, as a Senior Writer on social policy and served as the magazine's Rome bureau chief, White House correspondent and congressional reporter.

Among honors for his investigative journalism, Shapiro has received a duPont Award, George Foster Peabody Award, George Polk Award, Robert F. Kennedy Award, Edward R. Murrow Award, Sigma Delta Chi, IRE, Dart and Gracie awards, and was a finalist for the Goldsmith Award.

Shapiro is the author of the award-winning NO PITY: People with Disabilities Forging a New Civil Rights Movement (Random House/Three Rivers Press), which is widely read in disability studies classes.

Shapiro studied long-term care and end-of-life issues as a participant in the yearlong 1997 Kaiser Media Fellowship in Health program. In 1990, he explored the changing world of people with disabilities as an Alicia Patterson Foundation fellow.

Shapiro attended the Columbia University Graduate School of Journalism and Carleton College. He's a native of Washington, D.C., and lives there now with his family.

 
 
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Rick Rader, MD, FAAIDD, DHL (hon)

DIRECTOR OF MORTON J. KENT HABILITATION CENTER, Orange Grove Center

Rick Rader, MD is the Director of the Habilitation Center at the Orange Grove Center in Chattanooga where he is responsible for the creation, implementation and evaluation of innovative and novel programs of healthcare delivery systems for people with intellectual and developmental disabilities. He is the Editor in chief of Exceptional Parent Magazine and has published over 300 article in the field. He is the VP of Public Policy and Advocacy at the American Academy of Developmental Medicine and Dentistry and serves on the Board of the American Association on Health and Disability. He is a member of the Medical Advisory Committee at Special Olympics International and is the Medical Adviser at the National Alliance for Direct Support Professionals. Dr. Rader is a member of the Steering Committee at the National Task Group on Intellectual Disabilities and Dementia Practices. He is an adjunct professor of Human Development at the University of Tennessee-Chattanooga.

Keynote: Foundations of Developmental Medicine

How did a ragtag group of clinicians with no formal training, no recognized specialty, no certifications, no guidelines, no journals and no resources evolve into the American Academy of Developmental Medicine and Dentistry (AADMD) to become the global leader in collaborative healthcare for people with intellectual and developmental disabilities. This ongoing series showcases the historic contribution of maverick physicians with new beliefs, new ideas, new approaches and new insights and how they became the cornerstone of the respected policies and practices of the AADMD.

 
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Stephen Sulkes, MD

President, AADMD; Professor of Pediatrics, Golisano Children's Hospital

Dr. Stephen Sulkes attended Boston University for college and medical school. He was fortunate to experience pediatric residency in Syracuse, NY, under Frank Oski, and completed his fellowship in developmental pediatrics (in the era before Boards) at Boston Children’s Hospital, mentored by Dr. Allen Crocker. He then followed his wife and US 90 for two tanks of gas and found himself in Rochester, NY, where he has spent the rest of his career.

 

Steve has provided primary care for individuals with intellectual and developmental disabilities in residential and community settings, and developmental-behavioral pediatric specialty care at Golisano Children’s Hospital in Rochester. In 1985, he developed Rochester’s fellowship program in developmental-behavioral pediatrics, initially funded by New York State, then by the Maternal and Child Health Bureau’s Leadership Education in Neurodevelopmental and related Disabilities (LEND) program.

A glutton for punishment, he then took on leadership of Strong Center for Developmental Disabilities, the Rochester University Center for Excellence in Developmental Disabilities (UCEDD), which he now co-directs. These two programs have given him the opportunity to hang out with colleagues from around the country at meetings of the Association for University Centers on Disability, on whose board he has served, and of the AADMD, where he currently serves as President.

His research and advocacy passions merge around improving health care delivery for people with intellectual and developmental disabilities. When he is not working or thanking the nearest deity for his phenomenal family, he leads the Performance Measures, an ad hoc group of obviously non-professional and under-rehearsed singers of song parodies.