2020 Plenaries — One Voice

DAY 1 - Plenaries

FRIDAY June 5 | Eastern Daylight Time Zone

12:00 pM - 12:30PM: Welcome

A President’s Welcome & Plenary Introduction

Steve Sulkes, MD, AADMD President, Professor of Pediatrics Golisano Children’s Hospital — Steve Sulkes, MD, AADMD President, Professor of Pediatrics Golisano Children’s Hospital

Mark Wolff, DDS, PhD, Dean Penn Dental Medicine — Mark Wolff, DDS, PhD, Dean Penn Dental Medicine

12:30 PM - 2:00PM: Roadmap for Health Equity PANEL

Roadmap for Health Equity Data for Adults with IDD, 2019-2029 Panel

Gloria Krahn, Ph.D., MPH, Professor, Oregon State University — Gloria Krahn, Ph.D., MPH, Professor, Oregon State University

Jennifer Johnson, EdD, Deputy Director, Administration on Disability, Administration for Community Living — Jennifer Johnson, EdD, Deputy Director, Administration on Disability, Administration for Community Living

Susan Havercamp, PhD, Associate Professor Ohio State University Nisonger, Center for Psychiatry & Behavioral health — Susan Havercamp, PhD, Associate Professor Ohio State University Nisonger, Center for Psychiatry & Behavioral health

Alexandra Bonardi, MA, MS, Director of Intellectual & Developmental Disabilities Human Services Research Institute — Alexandra Bonardi, MA, MS, Director of Intellectual & Developmental Disabilities Human Services Research Institute

Julie D. Weeks, PhD Chief, Measures Research and Evaluation Branch, Division of Analysis and Epidemiology, National Center for Health Statistics. — Julie D. Weeks, PhD Chief, Measures Research and Evaluation Branch, Division of Analysis and Epidemiology, National Center for Health Statistics.

Katherine Cargill-Willis, Program Specialist, Administration on Disabilities, Administration for Community Living, Health and Human Services. — Katherine Cargill-Willis, Program Specialist, Administration on Disabilities, Administration for Community Living, Health and Human Services.

2:00 PM - 3:30: Healthcare Disparities in Adults with IDD& Dementia Panel

Healthcare Disparities in Adults with IDD and Dementia; A Search for Answers and Solutions

Peter Bulova, MD, Director, Associate Professor University of Pittsburgh Adult Down Syndrome Center — Peter Bulova, MD, Director, Associate Professor University of Pittsburgh Adult Down Syndrome Center

Nancy Murray, MS President, The Arc of Greater Pittsburgh at ACHIEVA — Nancy Murray, MS President, The Arc of Greater Pittsburgh at ACHIEVA

Seth Keller, MD, Neurologist, Neurology Associates of South Jersey — Seth Keller, MD, Neurologist, Neurology Associates of South Jersey

Michelle Rossi, MD, MPH, Associate Professor of Medicine & Epidemiology University of Pittsburgh — Michelle Rossi, MD, MPH, Associate Professor of Medicine & Epidemiology University of Pittsburgh

Clay Jacobs - Executive Director Greater Pennsylvania Alzheimer’s Association — Clay Jacobs - Executive Director Greater Pennsylvania Alzheimer’s Association

James A. Hendrix, Ph.D., is the Chief Scientific Officer for LuMind IDSC. — James A. Hendrix, Ph.D., is the Chief Scientific Officer for LuMind IDSC.

4:00 PM - 5:30: Poster Gallery & Exhibitor HalL Open

Browse Poster Submissions

6:00 PM - 7:30PM: Dignity in healthcare Panel (Pre-recorded) & Breakout Discussion (Live)

Practicing Dignity in Healthcare for Individuals with IDD: Addressing Inequities in Prenatal Diagnostics, Organ Transplantation, Mental Health and End-of-Life Planning & Care

HOST | FACILITATORMaureen van Stone, Esq., MS, Director, Maryland Center for Developmental Disabilities, Director, Project HEAL — HOST | FACILITATOR
Maureen van Stone, Esq., MS, Director, Maryland Center for Developmental Disabilities, Director, Project HEAL

GAP ANALYSISKara Ayers, PhD, Assistant Professor affiliated, University of Cincinnati, Associate Director, University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) — GAP ANALYSIS
Kara Ayers, PhD, Assistant Professor affiliated, University of Cincinnati, Associate Director, University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD)

PANELIST - Prenatal DiagnosticsBrian Skotko, M.D., M.P.P., Emma Campbell Endowed Chair on Down Syndrome, Massachusetts General Hospital — PANELIST - Prenatal Diagnostics
Brian Skotko, M.D., M.P.P., Emma Campbell Endowed Chair on Down Syndrome, Massachusetts General Hospital

PANELIST - End of Life Care/AgingClarissa Kripke, MD, FAAFP Clinical Professor of Family and Community Medicine, University of California, San Francisco — PANELIST - End of Life Care/Aging
Clarissa Kripke, MD, FAAFP Clinical Professor of Family and Community Medicine, University of California, San Francisco

PANELIST - Organ TransplantationMolly Burgdorf, J.D., Director of Rights Policy with The Arc of the United States — PANELIST - Organ Transplantation
Molly Burgdorf, J.D., Director of Rights Policy with The Arc of the United States

PANELIST - Suicidality/Mental HealthJohnny Payne MEd CDP, Director of Mental Health Services, Orange Grove Center, Chattanooga Tennessee — PANELIST - Suicidality/Mental Health
Johnny Payne MEd CDP, Director of Mental Health Services, Orange Grove Center, Chattanooga Tennessee

DAY 2 - Plenaries

Saturday JUNE 6 | Eastern Daylight Time Zone

12:00 pM - 12:30PM: Welcome

A President’s Welcome & Day 2 Plenary Introduction

Steve Sulkes, MD, AADMD President, Professor of Pediatrics Golisano Children’s Hospital — Steve Sulkes, MD, AADMD President, Professor of Pediatrics Golisano Children’s Hospital

Bernard Costello, DMD, MD, Dean University of Pittsburgh, School of Dentistry — Bernard Costello, DMD, MD, Dean University of Pittsburgh, School of Dentistry

12:30 PM - 2:00PM: Across the Lifespan- AAIDD & AADMD Joint Panel

In this panel, 2 organizations have 1 inclusive goal - AAIDD & AADMD discuss barriers to care across the lifespan for people with Intellectual and Developmental Disabilities

Team AAIDD

Alison Barkoff, JD Director of Advocacy, Center for Public Representation — Alison Barkoff, JD Director of Advocacy, Center for Public Representation

Alexandra Bonardi, MA, MS, Director of Intellectual & Developmental Disabilities Human Services Research Institute — Alexandra Bonardi, MA, MS, Director of Intellectual & Developmental Disabilities Human Services Research Institute

Julia Bascom, Executive Director Autistic Self Advocacy Network — Julia Bascom, Executive Director Autistic Self Advocacy Network

Sue Swenson, President Inclusion International — Sue Swenson, President Inclusion International

Amy Hewitt, PhD University of Minnesota, Social Worker — Amy Hewitt, PhD University of Minnesota, Social Worker

Susan M. Havercamp, Ph.D., FAAIDD, Associate Professor of Psychiatry. The Ohio State University Nisonger Center — Susan M. Havercamp, Ph.D., FAAIDD, Associate Professor of Psychiatry. The Ohio State University Nisonger Center

Margaret A. (Maggie) Nygren, EdD, Executive Director AAIDD — Margaret A. (Maggie) Nygren, EdD, Executive Director AAIDD

Team AADMD

Steve Sulkes, MD, AADMD President/ Developmental Pediatrics — Steve Sulkes, MD, AADMD President/ Developmental Pediatrics

Seth Keller, MD, Neurologist, Neurology Associates of South Jersey — Seth Keller, MD, Neurologist, Neurology Associates of South Jersey

Steve Perlman, DDS, MS, AADMD past president/ Pediatric Dentist, Special Olympics Global Clinical Advisor — Steve Perlman, DDS, MS, AADMD past president/ Pediatric Dentist, Special Olympics Global Clinical Advisor

Allen Wong, DDS, EdD, DABSCD, AADMD President elect, Hospital Dentist, Special Olympics Global Clinical Advisor — Allen Wong, DDS, EdD, DABSCD, AADMD President elect, Hospital Dentist, Special Olympics Global Clinical Advisor

2:00 PM - 3:00PM: Foundations in Developmental Medicine: Virginia Apgar

Rick Radar, MD, FAAIDD, FAADM, DHL (hon), Director Habilitation Center at Orange Grove — Rick Radar, MD, FAAIDD, FAADM, DHL (hon), Director Habilitation Center at Orange Grove

3:00 pM - 4:00PM: Poster Presentations & Awards

4:00 PM - 5:30PM: Exhibitor Hall Open

DAY 3 - Future Leaders Track

Sunday JUNE 7 | Eastern Daylight Time Zone

12:00 pM - 12:45pm: Student/Resident Meet & Greet

Doug Wells, MD, Student Resident Committee Chair — Doug Wells, MD, Student Resident Committee Chair

Alicia Thatcher, MD,Student Resident Committee Associate Chair — Alicia Thatcher, MD,Student Resident Committee Associate Chair

12:45 PM - 1:15pm: Inter-professional Case-Based Presentation

Emily Johnson, MD, Future Leaders Committee Chair — Emily Johnson, MD, Future Leaders Committee Chair

1:15 PM - 2:00pm: Career/Education Panel

Medical Panel: Facilitated by: Shannon Strader, MD Panelists: Michelle Cornacchia, MD | Matt Holder, MD, MBA | Seth Keller, MD | Emily Johnson, MD | Rick Rader, MD| Mary Dubon, MD
Dental Panel: Facilitated by: Ryan Lisann, DMD Panelists: Lynne Taiclet, DMD | Steve Perlman, DDS, MScD | Allen Wong, DDS, EdD| Lyubov Slashcheva, DDS | David Fray, DDS, MBA | Kristin Compton, DMD

2:00 pM - 2:15pm: Special Olympics Athlete Advocate Presentation + Q&A

Dustin Plunkett, Manager of Outreach at Special Olympics California & Self-Advocate — Dustin Plunkett, Manager of Outreach at Special Olympics California & Self-Advocate